Can You Recover From Small Fiber Sensory Neuropathy?

No, you’re not going crazy. It may be small fiber sensory NEUROPATHY!

Are you one of the millions of Americans who suffer with a bizarre symptom complex of chronic widespread pain, numbness or tingling in your extremities, G.I. issues such as constipation, bladder problems, dry eyes and no doctor can tell you the cause? Possibly you have been given the diagnosis of fibromyalgia and/or peripheral neuropathy. You may have been treated with drugs such as Cymbalta, gabapentin or Lyrica. These drugs do nothing to correct the underlying cause of your disorder, but have potent side-effects. New research has now explained this baffling disorder and its causes.

The symptoms can start out as a numbness or tingling in the extremities, along with painful sensations such as stinging, burning, itching, aching, or electric shock-like feelings. Also, a normal stimulus can create unpleasant sensations such as the sheets across the feet feeling like pins and needles. Worst of all these symptoms can occur anywhere in the body including the arms, legs, torso, face or even the mouth.

Usually individuals have been everywhere and none of the exams or tests so far have come up with anything. If this happened to you, you may even begin to wonder if you’re going crazy! Well rest assured that you are not; you probably have a disorder now recognized as small fiber sensory neuropathy or SFSN. Maybe you have seen a neurologist and even had normal EMG and nerve conduction studies, and they have “ruled out” peripheral neuropathy. But not so fast, these tests only detect large nerve fiber neuropathy, which usually develops years after suffering with small fiber sensory neuropathy.

Well you can stop worrying because there are tests available that can diagnose this condition.

Can small fiber sensory neuropathy be reversed?

Small fiber sensory neuropathy can often be reversed if the underlying cause is discovered by a doctor who knows how to treat this condition with a holistic approach, more on this later. And you are not alone, some 20 million Americans over the age of 40 now suffer with some form of peripheral neuropathy. In most, this peripheral nerve impairment is predominately in the small nerve fibers (SFSN) which begins as pain, burning, tingling and numbness in the hands and feet but with normal EMG and nerve conduction studies. This disorder can even create more bizarre symptoms when it affects your autonomic nervous system, then it can really make you feel like you going crazy. Why? Because this part of the nervous system controls your heart rate, blood pressure, mucous membranes and even sexual function.

With small fiber neuropathy of your autonomic nervous system you may experience common symptoms such as dry eyes, dry mouth, dizziness when standing up, constipation, bladder problems, sexual dysfunction, trouble sweating and red or white skin discoloration. This mixture of nerve sensation and changes in body function can lead you, or even your doctor, to think it’s all in your head, but it’s not! It’s in your small fiber sensory nerves. And you need to be properly diagnosed and treated.

What causes small fiber sensory neuropathy?

Once diagnosed your doctor must then become a medical detective to find out the underlying causes. The underlying cause for the clear majority of these cases is abnormally high blood glucose and insulin spikes after eating. This happens in individuals with diabetes and those with prediabetes. Research has now established that many individuals with small fiber sensory neuropathy have normal fasting blood glucose on testing, but their blood glucose and insulin spikes high after meals. When this happens repetitively over time the small fiber peripheral nerves become damaged. Their doctor missed the cause because they did not do sufficient laboratory testing beyond the fasting blood glucose. I utilize serum HemoglobinA-1C, a glucose tolerance test and fasting insulin. There is a great deal more to be said on the subject, to learn more attend my upcoming FREE workshop on peripheral neuropathy.

The second most common cause is undetected nutritional deficiencies e.g. folate, B12, B6 and D3. There is a catch, your doctor cannot rely on a regular serum B 12 or folic acid to diagnosis problem, especially if you have numbness and tingling in your extremities. You need a more accurate form of testing for these deficiencies. For example, with folate and B 12 deficiency I utilize serum homocysteine and methylmalonic acid. Also, serum vitamin D3 must be checked to see that it is reaching adequate levels to treat peripheral neuropathy. Again, is a great deal more information to be explained so I highly recommend my FREE workshop, see below for details.

The third most common cause is that of autoimmune disorders that attack the peripheral nerves. Many times, this is missed because doctors are not screening for all the different autoimmune disorders that are growing in our society at an alarming rate. Once diagnosed you need a doctor schooled in a natural holistic approach in the reversal of autoimmune disorders. Central to this treatment is addressing “leaky gut”, food allergies and specific nutritional needs of the immune system.

Learn how you can get your life back, many others have done it and so can you! Do not believe it? Why not come and find out for yourself? What you got to lose but pain!

Author Dr. Greg Fors

About Dr. Greg Fors

Dr. Greg Fors, D.C. is a Board-certified Neurologist (IBCN), certified in Applied Herbal Sciences (NWHSU) and acupuncture. As the director of the virtual Pain and Brain Healing Center, he specializes in a functional medicine approach to fibromyalgia, fatigue, brain fog, digestive disorders, depression and anxiety. He is a sought after international lecturer for various post-graduate departments and state associations. Dr. Fors is the author of the highly acclaimed book, “Why We Hurt” available through booksellers everywhere.

43 Comments

  1. LINDA LENNON elfman on December 19, 2017 at 7:29 pm

    Can sfsn be reversed. I am getting worse each day. Covered head to toe. My brain even clenches and crawls. Medications burn the nerves. I can no longer read, be in stores. Use phone without speaker. Lost much quality of life, now loosing private areas. Have shaky “panic” under breast bone when crawling happens. D3 13 but skin crawls when take.

    • Lisa Pollock on November 21, 2018 at 11:34 pm

      How are you doing now? I too have SFN (full body) with severe nerve damage. I started LDN 3 weeks ago and it’s helped tremendously with my weird sensations and I’m hoping whatever fire in my body was causing it has calmed enough for my nerves to grow back. I just need to know if we can ever get our full feeling back again! Have you talked to anyone that has? I’m hoping this finds you improved!

      • Mark on December 11, 2018 at 3:26 pm

        What dose of LDN are you using?

        Thanks

      • Mark on December 14, 2018 at 7:17 am

        Hello Lisa,

        What does of LDN are you taking? I just recently started this medication and I’m slow titrating up from .5mg.

      • Den Gibboney on July 18, 2022 at 8:27 pm

        What does LDN stand for? What is its full chemical or brand name?

  2. John Kenny on January 27, 2018 at 4:52 pm

    Hello: Dr. Greg Fors

    I have all the symptoms of having Small FIber Sensory Neuropathy.
    I will soon be getting a biopsy at UCSF to be sure, but if there is something I can be doing besides
    just taking Gabapentin, please let me know?

    Poor circulation , Often cold hands & feet
    Face very sensitive as if recent burned or dry
    Numb & Tingling feet, arms and hands
    shortness of breath
    Underarms are itchy
    Difficult to sit down without butt pain and tingling/numbness to increase

  3. Carol Boyd on February 21, 2018 at 7:14 pm

    Hello,
    My son was first diagnosed with SFN when he was 29 after a biopsy that took a year and a half. My son was in construction and worked day and night and at times forgot to eat. He worked out in the gym, rode his bike, and ran all the time. He probably was exposed to toxins in the workplace as well. His doctor has him on percocete on a daily basis which I fear about addiction. Can holistic medicine help with his condition, as I’ve read about different vitamins that can help with pain and inflammation. If you know of anything that can take my son’s pain away I would be greatly appreciated.

    • Sue Spitz on July 14, 2018 at 7:13 pm

      My son has the same site.., so many doctors…. Said it’s not curable, come back when it gets worse. So I called a man I know who was a doctor, then he started a health food store instead of staying in practice. He had my son start taking …
      Alpha-Lipoic Acid 150 mg. 3x day
      Biotin 5,000 mcg 1xday
      Benfotiamine 300 mg. 1 am & 1 pm
      Citrus Bioflavonoid complex 1,400mg
      1 am & 1 pm
      He said my son should not eat any animal products.
      After one month he has noticed a huge difference. Hope this helps!

      • Marina on August 30, 2022 at 4:03 pm

        Can you tell me the place you went to?

    • Lorraine M on May 26, 2022 at 6:03 pm

      Hi Carol. I’m a long time neuropathy sufferer. Multiple forms w/ severe constant pain. Addiction is a genetic mutation-period. EVERY one becomes physically dependent on a drug(s) but long time use doesn’t turn anyone into an addict. That’s BS some crooked people forced into th public. I’ve been to multiple training when I first got sick. If th medicine is stopped there’s a physical withdrawal period then it’s done.
      I send Prayers fr your son. I know I miss my life too🙏🏻

  4. Joan Miller on March 29, 2018 at 2:44 pm

    I have been diagnosed with SFSN and been on low dose of gabapentin for about 4 years – I have all the typical symptoms and had a biopsy done to verify the diagnoses. My most painful area is unfortunately the genital area and the burning prickling pain in the vulva area which is constant makes my life miserable and controls what I wear, where I go and how long I can sit – I carry cushions with me because hard surfaces make the pain worse – having tried all recommended treatment for Vulvodynia and seen a specialist for that with no relief from their recommendations and treatment I am at a lost as to how to get some relief. Wondering if anyone else has SFSN in this area and what they use or do to help with this constant pain.

    • Patricia M Wilhelm on May 31, 2020 at 1:19 am

      Joan
      You may want to consult a pelvic pain specialist as the symptoms you’re describing could be prudendal neuralgia. Find a doctor with experience in this

  5. Nidia on May 17, 2018 at 10:38 pm

    Would like to be contacted I have SFN

  6. David stevens on June 1, 2018 at 10:25 am

    I’m just near death all I need to say it’s bad need help no one wants to help they don’t care so sad

    • Vegeta on December 11, 2018 at 2:48 am

      Try dry fasting and the snake diet, it could make your condition better. For me it helped a little until now.

  7. Audrey Greenhalgh on June 5, 2018 at 1:01 pm

    Thank you Dr.Fors. Your explanation of SFN is the most helpful so far. My husband was diagnosed by an On Line dermatologist after three trips to the ER and local doctors misdiagnosed shingles.
    In my husband’s case the burning, painful rash appears in tiny blisters on his sides and lately-after six months-on the palms of his hands and between the groin. The only relief he gets is from oatmeal compresses and ant-itch lotion, antihistamines and pain relievers. However, I will thoroughly check out the three probable causes you mentioned. He is 90 years old and this is very sad.
    Audrey&George

  8. Julie Carter on July 8, 2018 at 7:41 am

    Can you talk more about the face and scalp when it comes to SFN. Also breathing, shortness of breath. Thanks

  9. Martin on August 10, 2018 at 5:55 pm

    I have sfn that has spread over my whole body over the past year from my feet all the way to my face. It is worse at night. I had neck surgery 18 months ago and the constant inflammation around my spinal cord since has most likely caused this. The intensity of the pain is spreading daily. My fingernails are grooved and my skin is slightly red and mottled. When you press fingers into the skin you can see the difference. I had to reduce my hours at work because I can’t sleep at night. I have had every blood test available, meg, nerve studies, qsart testing. I can’t get a skin biopsy in Australia as they don’t know how to interpret the results. My skin has aged about 10 years with lots of sagging and wrinkles. Has anyone else had skin changes. I contemplate suicide a lot which is a big call because I have 2 beautiful boys, a good job and nice house but I can’t live like this. I have had doctors say it’s all in my head until I had a bone scan of my neck which proved the inflammation. I’m scared of having another surgery to remove the implants and fuse my neck.
    I am really sensitive to medication and have tried them all eg endep, lyrica, gabapentin, cbd oil, mexilitine with little relief.

    My wife has been so unsupportive of me.
    I need help

    • JC on July 9, 2019 at 11:27 pm

      I hope you consider if you have developed post surgery a condition called Complex Regional Pain Syndrom (CRPS). I think you should seek treatment asap with ketamine infusion. (google Tampa FL CRPS ketamine infusions). There are people having some success in Italy with biophosphonates. The bone scan results suggest CRPS. Neridronate may work for you because you haven’t had this too long. (google Italy and CRPS treatment). Try Scrambler Therapy at Mayo. Try Ozone Therapy, repeatedly over and over. Because ketamine has helped some, researchers at Cleveland Clinic have a current trial now using dentist chair nitrous oxide for 2 hours each day several times per week. If you have CRPS, it is very painful and I am so sorry for you. You will get better, but the sooner you act, the better your outcome.

    • T Ybarbo on January 30, 2021 at 9:45 pm

      Hi Martin.
      I am 59 and was diagnosed with small fiber neuropathy in 2019.
      Yes, my skin has gone from firm and smooth to looking like my 95 year old mother’s skin. When not recently moisturized it appears to be thin crackled tissue paper. It also has a mottled appearance, very blotchy.
      I am having trouble finding a good moisturizer because heavy lotions make me “hot” – like I am wearing a full body stocking.
      I also have pets and heavy lotions attract fur (I have to laugh at that one).
      My skin is thin now and very fragile. It tears easily – again, like my mom’s skin.
      If I put my arm beside hers you literally cannot tell which arm is mine and which is hers.
      My nails are grooved to the point now that if they break or tear I wind up with different lengths on each nail.
      I also have begun noticing vitaligo.
      In some areas I have total loss of all pigmentation and in others I am getting large thick “freckles”.
      My neurologist says ALL of this is normal and to treat it symptomatically.
      For the skin, I have ditched the thick lotions like silicone glove (made by Avon) and Cetaphil and started using a whipped cream made by Neutrogena called HydroBoost. It has hyaluronic acid – very popular in women’s facial blends for wrinkles.
      The hyaluronic acid is supposed to plump the skin cells.
      If I apply it often it soaks in and leaves my skin feeling like satin.
      It’s still discolored, but it’s firmer and smoother.

      I understand how you feel and where your head is at.
      The pain and lack of a diagnosis drove me to the brink of suicide but I promised my son I would not check out on him.
      I just keep trying new doctors, new medications, and more supplements.
      Don’t give up.
      From reading these messages I see there are a LOT of people in the same shoes.
      Best of Luck.
      T

    • Samantha Miller on March 6, 2021 at 9:05 am

      Martin,

      I have been going through this for 3 years now. I am only 37 and within the last year have had drastic skin changes which was concerning for malignancy, so far they have not found one but I was told by my neuro that these skin changes are common as the small fiber nerves fees the skin as well and when they aren’t working rhe skin suffers. It’s unfortunate and makes me very self conscious. My hands and feet look like I’m 75 and my face has a lot of sagging and wrinkles. My hair started falling out and breaking off at an alarming rate.. I am diagnosed significant SFN from therapath skin punches. I have muscle twitching, cramping and weakness on top of the SFN. My rheum thinks possibly undifferentiated mixed connective tissue disease but im still not fitting any autoimmune disease perfectly. He started me on plaquenil but it made my neurological symptoms Flare up so I had to stop. I wish you well and keep searching. Take matters into your own hands. I bought an omega juicer and I’m starting AIP diet and bought the medical medium book.

    • David Hall on April 17, 2021 at 7:32 pm

      Hi Martin, i was wondering how hqve things developed for you in the past couple of years. Like you i am in Australia experiencing sfn symptoms and searching for the answers.

  10. Donna on August 28, 2018 at 5:27 pm

    Hello,

    I had a skin biopsy and it showed I have SFN. Each night as soon as I laid down my hands and feet would burn. Impossible to sleep so i was always exhausted. I lost all feeling in my feet, very strange when walking. A couple times I couldn’t stand up from my chair at work. Terrifying. Dr wanted to put me on meds to mast the burning. I refused. Ends up I’m gluten intolerant. I stopped eating gluten. My brain fog lifted and no more painful burning hands and feet at night. The improvement was immediate. It’s been two months now and some nights I am very hot, but it’s not the same as before. Hopefully my nerves especially are coming back…

    • J on August 3, 2020 at 9:22 pm

      How are you doing now?

    • Ricardo on March 31, 2021 at 5:36 am

      Wow this is a great story! I hope you are still improving.

  11. Ann Norris on January 24, 2019 at 3:11 pm

    I have been diagnosed with small fiber neuropathy that has developed from a severe copper deficiency which developed due to gastric bypass surgery that I had over 40 years ago. I am some improved taking large doses of copper for a year and will have to take it the rest of my life. I am seeing a new neurologist in a month to hopefully get more improvements. I thought I would be dead by now but GOD stepped in to help. I am able to do things that I had totally been unable to like shower, tie my sneakers, go outside with my Walker, put on makeup. All kinds of things that I had taken for granted two years ago. Anyway I posted this to make aware of anyone who has had bariatric weight loss surgery to know to keep check of your labs. A simple blood test would have saved me from being like this and it took two years three neurologist and a neurosurgeon before I was diagnosed. Have a blessed day.

  12. Mustafa Utku on January 30, 2019 at 8:36 am

    I had levator ani spasm and pelvic floor problems for 2-3 months.

    A neurologist applied electroacupuncture to me saying it will help relaxing my muscles, 15 minutes after it finished later I started to experience tingling, allodynia, burning sensation on my legs, 1-2 days later it was all over my body: arms, legs, face, everywhere. I started to take Lyrica 75, 2-3 days past, still no change, feels like it’s getting worse, and I have extreme anxiety, I also had depression&anxiety before acupuncture due to my levator ani sydrome experience. Doctors say electroacupuncture cannot cause this but nobody told me anything about SFN.

    Is this permanent? Can electroacupuncture cause this?

    • Kim Foushée. on December 23, 2019 at 10:16 am

      Is this kind of like Frequency Specific microcurrent? The same thing happened to me.

    • Chrissy on March 31, 2022 at 7:20 am

      This happened to me about ten years ago. The electro acupuncture also ruptured(last visit 2yrs of recovery)a disc that was just leaky at time. I did abou 3-4 sessions that ended terribly. I’ve had and been diagnosed with SFN and believe it came from the ruptured disc that happened hours after the visit. It’s associated with that spot in my back and then tight muscles play a part. Trigger points become inflamed and cause the tingling which leads down a whole path to feet burning etc.. in past I’ve received dry needling on the muscles surrounding. I have a home in TN and FL and have noticed it goes away when I’m regularly in the sun and sand but comes back if I’ve been away from the beach too long. The sand is grounding and the sun is healing for me. My symptoms always flare in April after being in TN for 8 months it’s been like clockwork over the years. I do not take medicine and I have not been able to find the link to why this happened with my nerves/back/muscles but it’s more connected to that than what most sites tell me it could be. It’s trigger points and myofascial related! They are missing it! I also get regular chiro and live an active life in the summer!!

  13. Lance H on February 23, 2019 at 6:17 pm

    At age 46 in New Hampshire USA and after 15 years of pain and seeing numerous doctors, I was just diagnosed with SFN via a skin biopsy done by a neurologist. Started in left ring finger, spread to other fingers, arm, eventually spread to right arm, now heels, toes, sometimes random parts of body. Pinching, burning, tingling, or throbbing pain in any tissue, skin, muscle, finger joints, finger tips. Left hand fingers extremely sensitive to winter cold, agonizing pain when the hand warms from being cold. Also severe hip/lower-back pain when sitting, sleeping on side. Also had a positive SIBO test and have GI issues, brain fog, weakening vision and zest for life. Neurologist ran a ton of blood tests, says the cause is unknown in 50% of cases and that is the case with me. So he says I have no hope for finding the root cause, and only thing to do is take Gabapentin. But I’m working towards a commercial pilots license and Gabapentin is not FAA approved so I’m not wanting to take it but will try a trial this week to see if it helps me get some sleep. I was THRILLED to find this web site and a functional med doctor who really understands this issue and I hope to make an appointment and visit him in MN.

  14. Ginnie Grimm on September 17, 2019 at 8:58 am

    Does your clinic do the skin biopsy?

  15. Ofer on September 25, 2019 at 1:15 pm

    I took 3 pills of Cipro Antibiotic, I have burning feet and hand palms, skin burns as well
    I can hardly stand and I have numb feeling in left leg. It is getting worse every day.
    Is there any cure, is this situation caused by medication reversible?
    No doctor realizes nor do they admit this situation was caused by this medication, but it all egan 3 days after taking those pills. any tips?

  16. Chris on October 11, 2019 at 11:22 am

    Some months ago I started burning, tingling, itching and prickling all round my torso. I subsequently ended up in hospital with low oxygen levels. Now diagnosed with a rare auto immune connective tissue disorder with accompanying lung disease and Raynauds. Thankfully the original pain and burning has gone but I have numbness and tingling in feet and legs. It seems the original burning etc and the current numbness are down to SFN which can be caused by auto immune disorders. They are treating the disorder itself but the only suggestion I’ve had for the SFN is Gabapentin.

  17. Harold Smith on January 26, 2020 at 9:34 pm

    I wonder if the toxins being added to our food supply are causing or contributing to small fiber neuropathy in many people? I am referring to titanium dioxide and silicon dioxide powders that are used as a “colorant” and “anti-caking” agent (or “flow agent”), respectively. Both of these are known to be neurotoxic.

  18. JOEL ELEDESMA on January 28, 2020 at 10:43 am

    I suffered the same symptoms, I started taking alpha lopaic acid 600mg 1 time a day and a b12 chewable. It has been 9 months now and my pain is about 95% gone. I still have a few other issues I’m dealing with like ED and just a bit of over sensory is left in my feet. The burning the stabbing sensation have all but disappeared. This article seems to be right on the causes but doesnt give much of a solution. I found what I did I’m a research journal from Germany where a large number of people benefited from what I did.

  19. K. Craig Shoemaker on February 22, 2020 at 4:25 pm

    What I have read in this comment section coincides with everything I have experienced to date. My SFN heightens greatly at night when I go to bed. Generally starts after I get in bed and goes all night. I am throwing the covers off and on all night. Get so warm I can’t stand to have them on me. But soon I put the back on so I won’t get a cold. The tingling and popping pain is extreme in some areas but the overall pain is like you have just rubbed your body with Vicks and that glowing sensation you first get when you put it on just stays with you all night and sleep is impossible. I wake up the next day exhausted and it really messes up your skin, it is like you have aged 10 years over night. Hands wrinkled and skin bulges in them. What is that?
    I can’t get to Minnesota. Do you have colleagues in the Seattle area that do what you do? I would like to contact them.

  20. Liz on March 27, 2020 at 12:54 pm

    How i feel for u al.l I too suffer with sfn over long pariod of time. Seen variety of Drs, Specialists, Allternative therapists. My skin is extremly sensative. When i dress/ undress it reacts straight away. Every day is a trial trying to cope with constant feeling of extreme tingling and sometimes painful in different parts of body this includes scalp. . No respite appart from bed time when it calms down somwhat only to be faced with it all again next day. Also have hip pains lower back. Received quartezone injections for this, helped a little but walking still difficult. Received reflexology /Accupunture last three weeks, felt slight improvement with treatments but of course R/A on hold due to recent virus ourbreak. If ur thinking of having Reflx or Accup please ensure they have a lot of experience in these fields.

  21. Lily Rodriguez on August 11, 2020 at 12:02 pm

    Don’t worry everyone, have hope! Support yourself through diet and lifestyle change! Look up a drug called pirenzipine and ask your doctor if it’s right for you^^ it can possibly cure it! Anyways, don’t worry. Try and lower your stress and do as much do your good for your body as possible! If you ant to look up dr, Teri Wahls diet. She used it to reverse Most of her MS Symptoms. And surely if that was possible then it may work to heal sfn too^^ you have to try everything for yourself, find what works best for you. Remember that these doctors don’t know exactly everything cuz small fiber nerve damage is one of the least studied neuropathies! You’ll all be okay, be your own advocate. Look up Ways to rebuild your health and quality of life through means of nature and relaxation! I know this can be healed!
    Bless you all^^ have a lovely day!

  22. Sarah Aguirre on August 27, 2021 at 2:18 pm

    Hi I believe I may have this as a result of the covid vaccine nerve pain in legs and arms and leg weakness, it’s been a month now & I can bar Function at this point.

  23. Brendan hoxie on September 16, 2021 at 5:21 pm

    SOLUTION! (Potentially)
    My horrific burning slowly diminished to nothing over 2 months. Sleeping well now with the help of 7.5mg mirtazapine and won’t need that soon.
    KEEP BLOOD SUGAR LOW
    I have h1ac of 5.4 (not even prediabetes)
    But my blood sugar would spike to somewhere between150-220 45 minutes after every carb meal.
    (H1ac is probably good because I was dieting)
    So to fix the burning i ate only meats, low cal veggies, diabetic protein shakes like glucerna hunger smart vanilla and any other carbs below 10g per hour
    This all was to keep blood sugar low. Results with develop within about 1 week.
    Another thing that would help even further, losing weight shrinks fat cells causing less pressure causing less pain.

  24. Chris on September 5, 2022 at 3:16 pm

    I have suffered horribly from SFSN for twenty-six years now. Back then, I went to the Mayo Clinic and was misdiagnosed with fibra myalgia. Skin biopsy confirmed diagnosis two years ago, and have been taking pre-gablin, but it does not work. It’s mostly confined to my neck, face, wrists, hands, ankles and feet. I don’t mind it, except for my neck, which burns making it impossible to wear a collard shirt (only t-shirts for me for over twenty years). Also, my skin as changed colors, primarily darker and now a blue/gray color with bumps and a fuzz balls easily expressed in on the areas where SFSN is present. A top dermatologist at Weil Cornell in NYC correctly diagnosed SFSN before the biopsy, and has seen this before. I also suffer from horrible bloating and constipation, of which the neurologist at NYU says are likewise symptoms of SFSN. He did the pin prick test and I fell nothing all over my neck and face. Sleeping is difficult due to pain, so I take Zolpiden, but I just wish I could take a pill and never wake up. My family left me over this, no friend believes such a thing exists, so it’s lonely. I also am HLAB-27 positive and have auto-immune disease (Lupus) as well as a form of pre-Multiple Myeloma called MGUS. I feel I have had not had a life for over 25 years and I have no future, living with this pain, alone and in poverty is no life. Instead of perpetually seeking a remedy, is there anyone out there that is at the self deliverance phase? I just want to find a doctor to put me out of my misery. I am looking into Dignitas in Switzerland, but it is difficult for an Americans to go there and use their services.

  25. Gail on November 16, 2022 at 1:19 pm

    What dosage of ldn for small fiber neuropathy?

  26. Tracy Phillips on May 29, 2023 at 2:18 pm

    I have been diagnosed with SFN. It took a year of seeing doctors. After reading the comments, it is clear to me that this may be permanent. I tingle itch and burn from head to toes. I so far have pushed back about taking medication. I do take Alpha Lopic, Biotin and B12. I use to get some relief from the symptoms but now I have them constantly, I think the constant itching is the worst or maybe the bugs biting feeling. The symptons started two months after Lung resection surgery. The surgery left me very numb across my back and through my abdomen. I had to change surgeons. I am still very numb across my abdomen and that is where most of the burning pain is the worst at times. The intensity comes and goes but mostly is constant now. I will say that so far at least I can sleep and get some relief during sleep. Warm Hot water from the shower feels very good. I try that right before bed to relax. Good luck to all. Horrible to live with this awful disease.

Leave a Comment